Monday, July 13, 2015

Lazy Days of Summer...

Whoever came up with the term lazy days of summer obviously did not have kids! We have been anything but lazy over here in the Lindsey house! Claiborne has been enjoying the pool, she loves to splash and watch the big kids. We've been going to the river when we can and are so lucky that we have a community pool that Claiborne can swim in.

Hudson finished Kindergarten in the middle of June and has been busy with swim lessons, lacrosse camp, VBS, and tennis camp....I cannot keep up with him! He is loving being home with us and has been a great help with sissy.

In the beginning of June Claiborne was once again in the hospital but this time it was a short trip for some fluids thank goodness. When C gets sick her body has to burn calories in order to fight off infection which is in her case causes severe dehydration because she cannot afford to spare any extra calories.

On a happy note our sweet girl was Baptized on June 21st. She is very blessed to have 3 incredible Godparents looking out for her.





Hanging out at the pool




Cousin time with Emma



Hudson and Mack went fishing over Fourth of July weekend with friends!



Best big brother award goes to Hudson!




Last day of school!



Claiborne has been doing a great job in PT, this was our last day with Andrea because VCU Children's pulled all of their services from early intervention. Don't get me started on that...


St Christopher's Lacrosse Camp!






Claiborne and her Godparents, Lauren and Chris Darden and Ti Hensby


Take note...all 4 looking at the camera!


It is so fantastic to have Ti as one of Claiborne's Godmothers. She and I are Godsisters ( my parents are her Godparents and vice versa) so the fact that she will always be there for Claiborne is extremely special for me.




Hudson loved VBS, C loved the nursery, and I forgot how tiring 8 three & four year olds are!






Hudson lost tooth number 3!



Fourth of July at the River! Hudson, Mack, and I went to Urbanna to watch the fireworks


Hanging out on Mr Mike's boat


This girl is just the most adorable thing


Although she can't get in the water she did get to visit the beach!


Lastly, I snuck into her room the other day and it hit me that babies don't keep. We are in the final countdown to her 1st birthday on Saturday and I am just not ready. I stopped aging her back in November when all of this started so I cannot comprehend the fact that she is turning 1.


Tuesday, June 30, 2015

Join My Stella & Dot Team!

So I've been with Stella & Dot for 2 months now and I cannot be more thrilled with my experience! So thrilled in fact that I would love some of you to join me! TODAY is the last day to get our amazing signup special!

SD is offering to give you a rebate for the $199 starter kit fee, this is one of the rarest promotions that they do! I cannot emphasize enough how amazed I have been at how my first 30 days went, to say even Mack was impressed was an understatement, and I have zero sales experience and have been known to break out in hives when talking in a group setting! I am so glad that I took this leap of faith, come on this journey with me!

Comment or visit my website to get in touch with me if you're interested in finding out more information! www.stelladot.com/elizabethlindsey



Friday, June 12, 2015

Sometimes Our Normal Sneaks Up On Me


Well I have to admit that things at home had been going really well since Claiborne's last hospital stay, so great that I forgot how quickly things can change.  What started out as rainy morning where I thought C was just sleeping in like the rest of us turned into a 3 day hospital stay.  I knew she wasn't feeling well when she slept on me for 2 hours that morning, she does not snuggle. She then fell asleep on my dad after playing for maybe 15 minutes. I tried to rationalize and tell myself that it was just a gloomy day...we all just wanted to be curled up in bed! Finally I took her temp and it was up to 100.6, which for her is high, off to the Dr we went.

They sent us to the ER from there and well I knew we wouldn't be going home at that point. She had a couple xrays which didn't show anything but since she was so dehydrated they wanted us to stay so she could get fluids. One of the reasons we have to be so careful when she gets sick is because while her body is trying to fight off infections it is burning precious calories that she cannot afford to lose. Failure to thrive is a tricky thing, we are constantly walking a fine line regarding her caloric intake.

Okay, back to Claiborne! Around 12:30am C had an ultrasound of her belly, when the on call radiologist read it he saw an abscess. When the Drs made rounds we started hearing things like emergency surgery! I'm usually the calm one, the stoic one, but when someone starts talking about cutting into my child that scared the shit out of me. We waited all day for the surgeon, I had given up hope that we would speak to the surgeon Friday when she showed up at nearly 11pm. On her way in she had run into a family friend of ours who happens to be a radiologist at the hospital, she works with a lot of children and her opinion was that it was not an abscess and did not require anything other than heavy doses of antibiotics. Our surgeon agreed and so I quickly retreated from the ledge I had been balancing on. They put her on IV antibiotics and by Saturday late afternoon she was sleeping in her own crib.

If you have ever wondered why Richmond needs a real Children's Hospital what we went through last weekend is a perfect example. I have no doubt that had we gone to any other hospital in Richmond they would have operated on her, thank goodness we went to the one where all of C's Drs are affiliated. Every night in the city of Richmond there is only 1 radiologist on call for the hospitals to rely on. There is only 1 general pediatric surgeon practice and they cover 4 hospitals and are given 24 hours to respond to surgical pages.  This is not and should not be acceptable in a city this size, what if Claiborne had actually needed emergency surgery before the surgeon had answered her page? Who would have been operating on her?






Wednesday, June 3, 2015

A Thank You & An Update

First off I have to sincerely thank everyone that shopped the Arbonne party for Claiborne! We paid down a bill or two which might not seem like much but believe me every little bit helps!

It has been 8 weeks since Claiborne got her GJ tube and she has been super happy! I mean a changed baby! Her demeanor is so much better and she is gaining weight like a good girl! The only point of concern has been the fact that she has had 5 different staph infections since getting the tube and has had horrible granulation tissue around her site. We have been on every antibiotic! Her GI doctor has consulted with infectious diseases up at UVA and we are aggressively treating it this week, so fingers crossed we can clear it up!

About 2 weeks ago we also had C's blood drawn for 2 genetic tests, Fragile X and Microarray, it will take 6-8 weeks to get the results and so far I have not obsessed over it. Whatever they tell us, even if they don't give us any answers it was the right next move. The hardest part about a failure to thrive diagnoses is that there are very few answers as to why this is happening to her.





9 month picture!




10 month picture!

Now that the weather is better we've been going to the river :) This girl loves hanging out at the pool! I did find out that she cannot get in a river, lake, or ocean because ya know she has a hole in her body ;) She doesn't seem to mind though!


Hudson and Perry have become big buddies...


And in other news...I've become a Stella & Dot stylist! I am thrilled about starting this new chapter and putting my commission towards C's medical bills! If you want to checkout my website click here!  There are some amazing specials going on right now and our Fall Preview items will be live tomorrow!


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